This week’s reading, “Citizenship in School:
Reconceptualizing Down Syndrome” from Christopher Kliewer’s Schooling Children with Down Syndrome,
started out feeling like it was going to be a more complicated read due to the
language. To a degree, it was, but it
proved to be very interesting in the end.
Kliewer argues that children with disabilities, in this case Down
Syndrome, should not be segregated from general education classrooms. Instead, he argues in favor of an inclusion
model that is beneficial to disabled children in giving them the opportunity to
thrive as a valued part of a community. This
is beneficial to the non-disabled students as well by creating a culture of
acceptance. This reciprocal relationship
is detailed in the explanation of Shayne’s classroom: “Community acceptance requires opportunity
for individual participation in the group, but opportunity cannot exist outside
of community acceptance. … Shayne felt that she broadened and strengthened the
learning opportunities opened to all her children” (p. 75). It was inspiring to see how the teachers
Shayne and Colleen took the time to understand each of their students as
individuals, and where their strengths and abilities were, without seeing them
as disabled or non-disabled. “Shayne recognized
a child’s nonconformity as a natural human diversity; a source of strength that
could be supported by the school community in order that it add a unique and
valuable dimension to that community”
(p. 78).
The article reminded me of something I had seen a while back
on the Today show. Watching the segment again, I
can see that what is happening at this school is exactly what Kliewer is
advocating for. The IDEAL School in Manhattan is a private school built around inclusion. The school was founded 7 years ago by parents
of children with Down Syndrome who wanted their children to have the same
educational opportunities as their peers by being in classrooms together with
their peers. The school mirrors the
model of Shayne’s school, in that the curriculum is built based on each child. Though they all learn the same thing, each
child has an individual learning plan.
The head of the school mentions in the clip that the social education of
special needs students is just as important as academics, and for the
non-disabled students, experiencing diversity is important. They are building that reciprocal community
in their classrooms. I really admire the
work that this school is doing, and the fact that it so closely resembles what
Kliewer is arguing for in his book leads me to believe he would really approve
of the IDEAL school’s model of inclusion.
I was reminded of a number of themes from previous readings
as I went through this article. Here are
a just a few of the quotes I highlighted:
SCWAAMP –
Douglas Biklen:
Schools as cultural sorting machines that “justify a competitive ethic
that marginalizes certain students or groups of students … [that] legitimize
discrimination and devaluation on the basis of the dominant society’s
preferences in matters of ability, gender, ethnicity, and race … and [that]
endorse an elaborate process of sorting by perceived ability and
behavior.” (p. 73)
Safe Spaces –
“To value one another is to recognize diversity as the
norm.” (p. 79)
Johnson & McIntosh –
“If a misunderstanding emerges within the act of
communication, we tend to fault the party with the least amount of cultural
privilege and proceed to clinically identify which element of that individual’s
communication is responsible for the misunderstanding.” (p. 94)
Brown v. Board of Education –
“Vygotsky found that the culture
of segregation surrounding people with disabilities actually teaches
underdevelopment of thinking through the isolation of children from socially
valued opportunities.” (p. 83) The integrationists argued that effects of
racial segregation on children were harmful both socially and
psychologically. The effects are the
same with segregation based on disabilities.
Thought to Share: When
I was in the 8th grade, I joined the Peer Partners program at my
middle school. Special Education
students were separated into their own classrooms at my school, and this
program put general education students like myself into these special education
classrooms to interact with the students and build mutually beneficial
relationships. It remains a bright spot
in my school memories. The very
beginning of this article brought me back to a moment with one particular
student, Rafael. I remember going into
the classroom one day, and he came racing across the room, waving a worksheet
he had just gotten back. He had gotten
everything correct, and proudly showed me the sticker at the top. He told me, “Jamie, you know what? If I keep doing really good, they’re going to
let me be in the other classes.” I didn’t really know how to respond, though I
encouraged him to keep working hard.
Like Mia and Jason at the beginning of the article, Rafael was aware that he was being kept separate
from where he wanted to be because of his disability. His frustration and discouragement over that
fact was regularly visible. Realizing
now that that was 16 years ago (!!!), I find myself wondering if Rafael ever had the
opportunity to experience the inclusion that he so desired.